On January 30 I went to the hospital on an outpatient basis to have a lymph node with “atypical cells” removed. I thought it would be a quick incision, I’d go home, and be back at work the next day.
wrong wrong wrong wrong wrong
It must have been the word “atypical” that resulted in my misunderstanding just about everything, since that is how the 6cm tumor in my left breast was described — there are no signs of cancer, but there is an area that looks atypical.
I had noticed something was wrong in October, 1999, but it was July, 2000, before I could get anyone’s attention and stop being dismissed. I had a very aggressive, hormone-induced cancer. Thank how small it was in October, 1999. A lumpectomy, a little chemo and radiation and Bob’s your uncle. Nooooooo. I fought for nine months and got a radical mastectomy (and the physical and mental scars that go with it), breast reconstruction, and the chance to spend the rest of my life feeling like a freak.
But am I bitter? You bet your sweet ass I’m bitter.
As a result, “atypical” is not one of my favorite words.
Actually, I was having surgery on my parotid gland (salivary), which my specialist knew (and probably mentioned). The anesthesiologist was wonderful, he put me under just enough that waking was not a complete climb out of the pits of hell. I just woke up. Wow! Who knew?
I am a side sleeper and for whatever reason, when I woke up in Recovery I was on my right side, as was the incision. The nurse told me to roll over, which I did, whereupon she began yelling at me that I had pulled out my drainage tube because it was tangled in the blankets. Since I hadn’t known I had a drainage tube, I did not understand why I was at fault. I do remember telling her to “stick it back in,” to which she replied, “that can only be done surgically.” I know I said, “Bullshit. I’ve pulled drains loose before and always reinserted them.” I think she was so upset she had to go lie down because I don’t remember seeing her again.
The incision began at the front of my ear.

I did call the hospital’s patient advocate to complain about being yelled at for pulling loose a drain I didn’t know was there, and she cut right to what she saw as the real issue: in the turnover Surgery had not informed Recovery that there was a drain inserted. She was sorry I had been yelled at, but it had alerted her to the larger issue.
I was told I needed to spend the night in the hospital (which in light of later events, would have been the best course) and I began complaining. I have spent two nights in the hospital — each time I gave birth. The first time, I had the bed by the door and the woman in the other bed knew every single person in Fresno and they all came by to say a big hello. Then, that night, when I thought there would be sleeping, they came in to give her a transfusion because her doctor (a GP) hadn’t called in a surgeon (she had a BIG baby) and she had lost massive amounts of blood.
The second time, my roommate snored, so I asked if I could change rooms and they put me in a freezer. AND they told the woman I had moved because of her snoring so she came around for a chat. I was mortified. I don’t like being in hospitals. I can be very persistent and they let me go home.
I slept all of Thursday. I would wake up, have a bite to eat, and think, “A nap sounds good right about now,” and go back to sleep.
Friday, I went to hell. I apparently excel in the creation of hematomae — remember the back of my hand? The absence of the drainage tube meant all the blood and plasma and detritus of the surgery had nowhere to go. I had no neck on the right side. My ear had gone into hiding and I was just generally miserable. I called the exchange and the doctor on call told me I should definitely do something.
So I went to the ER. They did an ultrasound and confirmed a subcutaneous hematoma, which they kept referring to as a lake. However, they would, under no circumstances, touch it. I explained to them that aspirating it would be a piece of cake. Oh, nonononono. The carotid artery and facial nerves are in there. So I had spent a long time accomplishing nothing.
The scar goes around the back of my ear and down my neck.

I love bruising. So colorful. So festive.
My specialist had no qualms whatsoever about carotid arteries and facial nerves. On Monday, she numbed the side of my face, and withdrew the gunk in there. I said, “That’s not blood.” She said, “It is blood that has started to break down.” “Oh! It’s rotting blood!” A patient sigh: “It is blood that has started to break down.” The only thing for a hematoma is compression which I knew from the hand thing, but this was my neck and it does things like breathe.
But medical science has found a way.

I went back three times to have “blood which has begun to break down” removed. I have worn this thing pretty much 24/7 since February 4. Today I got the stitches out and I only wear my wimple for 10 hours a day. I swear I do not know how women in the Middle Ages ate since opening the mouth is pretty optional in this thing.
I have never felt so old, worn-out, and just plain unattractive in my life.